AH..CRAZY week so far I swear. Well to start off our week.
In this house- we do LAZY Monday's..so you can only imagine our Monday. I got caught up on some PartyLite orders. Alannah had physical therapy (which mind I add..she HATES. and acts like she's being tortured and dismembered..)
Tuesday we had out 15 month check up (At a day shy of 17 months old--Doctors these days can't count I guess) During her check...We've discovered Alannah is 34.5" long (99.4% for length) 21 lbs and 14.5 oz ( 42% for weight) and 18" head circumference. All in all- she's NOT gaining any weight; and is SUPER freaking tall...(haha) So we had a chat with the nutritionist- Switching from Neocate Jr. to Tolerex. Well during her "doctor feel me up" time we noticed her belly is SUPER sensitive and she screams..Off to radiation we went..(Me being the mom I am--I'm thinking her G-Tube blew open her stomach- thus why she's not gaining any weight..etc.) Turns out my kid has a GIANT-- by giant I MEAN HUGE!! piece of poo stuck in her bowel..HELLO Mirlax (Which we do every other day because we experience major blow outs) As I'm viewing Alannah's X-ray-- I see the best thing I have EVER seen on my child..Something a mom of an SMA kiddo loves to see, CLEAR LUNGS! My heart melted- I was overwhelmed. He compared it to 5 months ago when she was rushed to the ER when she stopped breathing and I had to give her CPR- THEY LOOK AMAZING! HUGE weight lifted off of my shoulders! We go our shot; and headed home..she didn't even cry! My tough girl!
Wednesday she had Occupational Therapy- Alannah got to color and show off her new slinky..and guess what news we got then...Her new Stroller and Stander are IN! and waiting in the office to be delivered and set up! (I think I'm more excited about both items more than she or her dad is...) We ended up having to skip our Iowa City trip to the Communications and Disabilities Doctor --Personal Reasons-- Alannah ended her Wednesday visiting her Grandma and swinging on the swings with her Papa and Aunt Cassidy.
As our Thursday is reaching it's mid-day point. Alannah is being goofy trying to throw herself out of her chair, yelling at me because I won't give her my pens, and being very mean to Mindy her nurse.. She's a major sass..I think she misses Karen already! :) And may I add..I'm not ready for work tomorrow..grr...
We are also thinking about having a cook out for Alannah's 1.5 year birthday sometime in June. Alannah wasn't able to have her HUGE 1st birthday blow out I planned for her because we were locked up in the hospital :( So if plans go good with daddy- we're going to do it BIG!! And We can't wait!! We also just celebrated our 17 month birthday yesterday!! YAY! Go Alannah!!
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