Goals for August; SMA Awareness month

Ok; so not much new with Alannah - Got rid of her G-Tube infection, she made some awesome Fathers Day cards, and we've even been pondering taking her fishing and swimming; except its been WAY too hot! Lately; well the last few days - she's been having a VERY high heart rate; and normal O2. Been good on the heart rate and now a little crackly in the upper lobes in both lungs..nothing a few extra treatments couldn't take care of. She is adapting to her new formula change very well; and we're starting to actually lose touch with our Miralax routine. (She's been able to do without) We also had our family pictures done! Which turned out AWESOME - Thanks to Stephanie Johnson! :)

Ok - so there has been a lot of talk about Alannah's SMA BBQ; well we have decided to post pone it until late August. Since August is SMA awareness month; we figured it would go together GREAT!

We're also doing a fundraiser our goal is 400.00$; we want to get wrist bands; and t-shirts made for Alannah's Fight! The left over money that isn't used for the shirts and wristbands will be donated to SMA Gene Therapy! Fundraiser starts TONIGHT!  You can either donate through GiveForward; or you can order off of the Partylite website I have set up! If we can get enough donations to be able to get the T-shirts, Wristbands, AND donate more than 200$; THAT would be AMAZING! Lets see what we can do in 1 month!
Give Forward! Fighting to Cure SMA for Miss Alannah Jay

Fighting to Cure SMA; ONE candle at a time

(Also; whoever donates for the wristbands and T-shirts will be receiving one of each for contributing to our fundraiser!)

We are completely excited to also say we almost have enough money saved up to get rid of Alannah's crib; and get her a TWIN SIZED BED!! (It'll be easier to get to her; and do her treatments!)

Here are some Family pictures;