Completly OVERDUE

The title pretty much says it all!

Since the last time I have posted; We've celebrated more birth-months - Completed TWO awesome fundraisers; and now planning Halloween costumes and 2nd Birthday preparations!

Alannah's BBQ Luau was a complete SUCCESS! We doubled our goal of 400$; ended up raising 824$!! Amazing right? Her online fundraiser goal was another 400$; beat that by 154$. so all in all we raised 978.00$ to help with medical and SMA Gene Therapy. Alannah also is a proud new owner of an Ipad2! (Thanks to theGSF foundation).

Alannah's overall health has been magnificant, besides a little bump about 3 weeks ago when she completly coded on me. She was rushed to the Emergency Room, and had a 3 day hospital stay; came out of that happy and healthy besides having psuedomonas; which she completed her oral (gtube) anitibiotics, and is almost done with her neb. antibiotics (TOBI) We had a pulmaniary appointment again in IowaCity last Monday; which she passed with flying colors. Dr. Starner was very impressed with her considering she stopped breathing just 3 weeks earlier. And she did AWESOME on the trip there and back. She now (Just like last winter after her 9.5 week PICU stay) has once agian, ANOTHER eye infection..Weird how they always seem to pop up after shes sick. (rx. Vigamox)

Alannah is now starting speech therapy through AEA. And was very eager to show off her singing skills last Tuesday to her new teacher! She loves to play the piano and sing on her Ipad. She also loves going through her ABC's and listening to the animal noises. She thinks the Lorax is a Sheep; and insists that he "Baa's" LOL

She is also accomplished winking, and rolling over (to an extent) She understands the concept of rolling over, and has completed it numerous times. Except now its getting dangerous; she found a way to wiggle in her bath chair, then roll over into the water. NOT COOL!

Alannah FINALLY met people just like her; made me proud she has come so far, and was excited to see her friends I have told her about. I could tell in her eyes she didn't feel left out anymore, and that she wasn't alone in her situation. Sometimes I feel bad about her being around "normal" kids. because she loves to play with them, but doesn't fully understand why they can do stuff that she can't. Atleast she has one friend that plays gently with her, and she sure LOVES her Alecya! :) <3

Alecya is our neighbor upstairs, just a few months younger than Alannah; and the cutest little bug ever!



Having such a special child is such a blessing. Either everyone knows her; or they WANT to meet her. When she goes places; people want to know her, or they already know her and want to know more about her. Yet some people don't cherish their relationships with her (which makes me very sad) Alannah makes huge impacts on everyone she meets; People in our apt. Complex know so much about her; and have never met her! Example being; My dad took her for a walk today while she was in her stander - TWO people; whom I have NEVER spoken too acknowledged her, talked to her, and then saw me, and complemented me on my beautifully smart child. (Most of them know her because of the flyers we put around for SMA Awareness Month -August) and others know her because of her Ambulance ride 3 weeks ago. BUT it doesn't matter HOW they know her..what matters is that they ACKNOWLEDGED her! instead of ignoring her, or giving her dirty looks (Which most people in public aeras do; and it makes me wanna punch them...)  My point being; if you know my daughter; or any child with SMA - let it be known your life has forever changed because of your relationship with that child. Life is precious and it's not gaurenteed. These children are here for a purpose. and that purpose is to let people understand to never take anything for granted. And that just because they can't walk and are physically disabled..doesn't mean their brains don't work, and that they don't have feelings. These children are brilliant. Wise. and FULL of emotions!  My life as her mom has made me a better person. I can't thank or even express to her how much I appreciate that from her. Words cannot express my love for her either. She's just THAT amazing..

We have opened a facebook page to help with extra medical costs; and suppliments for her diet. (Her insurence WILL.NOT cover them)
www.facebook.com/tutus4Alannah

CheckItOut! :)

I will also still be selling Alannah's wristbands. They're 5.00$ a piece; we have; HotPink,Purple,LightBlue,LimeGreen,&GlowInTheDarkGreen!

E-mail;LindseyCalby@gmail.com for info!